What kinds of questions might the Cavernous Malformation Registry help answer?
There are many questions that may be answered through the Cavernous Malformation Registry. For example:
- Which symptoms are most common?
- What medications do our patients take?
- What other conditions do our patients have?
- How many participants can a pharmaceutical company expect to recruit for a trial?
- What is the natural history progression of CCM?
- What are potential new pathways for treatments and cures?